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Disease-Specific Organizations

disease-specific organizationsAlzheimer’s Association
800-272-3900
The association’s nationwide network of chapters offer frontline support to individuals affected by Alzheimer’s through 24/7 information and referral services, and education and support groups. Check out their Dementia and Driving Resource Center for signs of unsafe driving, tips on having the conversation, and video vignettes illustrating supportive conversations taking place in four different situations.

American Cancer Society
1-800-227-2345
The American Cancer Society publishes the Caregiver Resource Guide: Caring for a Loved One with Cancer.

American Diabetes Association
1-800-342-2383
The American Diabetes Association works to prevent and cure diabetes. It offers information, resources, and advocacy. 

American Heart Association
1-800-242-8721
AHA is the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke.  

Columbia Lighthouse for the Blind
The organization is dedicated to helping the blind and visually impaired. CLB’s programs and services include training and consultation in assistive technology, employment marketing skills training, career placement services, comprehensive low vision care, and a wide range of counseling and rehabilitation services.  

Depression and Bipolar Support Alliance (DBSA)
1-800-826-3632
DBSA is the leading peer-directed national organization focusing on the two most prevalent mental health conditions, depression and bipolar. 

Lewy Body Dementia Association
1-844-311-0587
The group focuses on outreach, education, and research of lewy body dementias. It provides resources for caregivers.

Mesothelioma Center
412-471-3980
The Mesothelioma Center is dedicated to providing those who suffer from the asbestos-related cancer malignant mesothelioma—also known as asbestos cancer—or from asbestos-related lung cancer, or who know someone who does, with the most up to date information and support.

Michael J. Fox Foundation for Parkinson’s Research
1-800-708-7644
The foundation focuses on Parkinson’s research, disease information, resources, and support.

National Memory Screening Program
866-232-8484
The Alzheimer’s Foundation of America initiated National Memory Screening Program as part of its mission to provide “optimal care and services to individuals confronting dementia, and to their caregivers and families”…and as part of its focus on “Caring for the Nation.”

National Multiple Sclerosis Society
1-800-344-4867
The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

National Parkinson Foundation
This website is a useful resource for patients, caregivers, and professionals.

Rosalynn Carter Institute for Caregiving
229-928-1234
The Rosalynn Carter Institute for Caregiving serves and supports both professional and family caregivers dealing with dementia. It also provides tips and strategies for caregivers on best practices for caring for loved ones and themselves.

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