Caregiver Groups Directory

AARP
1-888-687-2277 toll-free
1-888-342-2277 Spanish toll-free line
The AARP’s website covers the organization’s advocacy positions on a variety of elder topics including Social Security and Medicare. Helpful features include information on comparing Medigap insurance policies and information on Medicare.

Administration for Community Living / Administration on Aging

The Administration for Community Living was created around the fundamental principle that older adults and people of all ages with disabilities should be able to live where they choose, with the people they choose, and with the ability to participate fully in their communities.  ACL helps make this principle a reality for millions of Americans by funding services and supports.

Alzheimer’s Association
800.272.3900

The association’s nationwide network of chapters offer frontline support to individuals affected by Alzheimer’s through 24/7 information and referral services, and education and support groups. Check out their Dementia and Driving Resource Center for signs of unsafe driving, tips on having the conversation, and video vignettes illustrating supportive conversations taking place in four different situations.

American Hospice Foundation

This organization provides information and supports programs for terminally ill and grieving individuals, their families, and the professionals who care for them.

Caregiver Action Network
202-454-3970

The nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.  

Centers for Medicare and Medicaid Services

This is the place for information on Medicare and Medicaid.

Center for Medicare Advocacy

A private, not-for-profit organization that produces a wide array of written materials to assist Medicare beneficiaries and their advocates including self-help packets, brochures, and a quarterly newsletter. Additionally, CMA is involved in education, policy making, and litigation impacting Medicare beneficiaries throughout the country.

Consumer Financial Protection Bureau

Ensures that consumers get the information they need to make sound financial decisionsPrint copies may be ordered from CFPB. Consumer Complaint line for financial products (mortgages, loans, bank services, credit reporting, etc.) 1-855-411-2372.

Disability Employment TA Center
The Center will provide evidence-based training and technical assistance (TA) to the Administration on Disabilities (AoD) grantees aimed at improving competitive, integrated employment (CIE) and economic outcomes for individuals with disabilities across the nation. 

(The) Eldercare Locator
1-800-677-1116

Sponsored by the U.S. Administration on Aging, the Eldercare Locator is a national clearinghouse for Long-Term Care and helps individuals find local caregiving services / resources.

Elizabeth Dole Foundation

The foundation seeks to strengthen and empower American military caregivers and their families. The Elizabeth Dole Foundation manages the Hidden Heroes Caregiver Community where caregivers of all wars can find peer support and advice.

Family Caregiver Alliance National Center on Caregiving
(415) 434-3388 | (800) 445-8106

FCA provides services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia. Our services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers.

Latinos for a Secure Retirement

LSR’s mission includes protecting Social Security, strengthening Medicare, as well as increasing pension access and financial literacy. It has fact sheets and information focused on the retirement issues facing Latinos.

MANA, A National Latina Organization

Since 1974, MANA has been the leading voice for Latinas in the areas of health, financial well-being, education and technology access, environmental concerns, civil rights and diversity and inclusion.

Meals on Wheels America
1-888-998-6325

Meals on Wheels America is the oldest and largest national organization supporting the more than 5,000 community-based senior nutrition programs across the country that are dedicated to addressing senior hunger and isolation.

Medicare Rights Center 
Helpline: 1-800-333-4114

A non-profit organization that operates a national telephone helpline in order to help callers understand Medicare benefits, find the right coverage, and understand how any existing coverage works with Medicare.  Callers living on low or fixed incomes are also screened for additional programs that they may be eligible for that can help pay costs of Medicare.

Mesothelioma Center

The Mesothelioma Center is dedicated to providing those who suffer from the asbestos-related cancer malignant mesothelioma—also known as asbestos cancer—or from asbestos-related lung cancer, or who know someone who does, with the most up to date information and support.

National Alliance for Caregiving

NAC conducts research, does policy analysis, develops national best-practice programs, and works to increase public awareness of family caregiving issues. They also provide technical assistance to a national network of caregiving coalitions representing nearly 30 states and localities in the United States.

National Alliance for Hispanic Health

The National Alliance for Hispanic Health (NAHH) is a science-based, nonprofit organization dedicated to improving the health of Hispanic communities. NAHH is the nation’s foremost source of information on Hispanic health and a science-based, community-driven advocate for health for all. As part of its mission, the alliance operates a free and confidential health helpline in Spanish as well as English.

National Alliance on Mental Health (NAMI)

NAMI, the National Alliance on Mental Illness, is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.

National Council on Aging
571-527-3900

NCOA helps people aged 60+ meet the challenges of aging by providing innovative community programs and services, online help, and advocacy. Their website includes helpful online tools such as Benefits Checkup, Economic Security advice, and the AgeWell Planner.

National Caucus and Center on Black Aging, Inc.

NCBA is one of the country’s oldest organizations dedicated to aging issues and the only national organization devoted to minority and low-income aging. NCBA has helped protect and improve the quality of life for elderly populations, making certain that legislators, policy makers, advocacy groups, service organizations, and the public include minority seniors in their programs, policy- and law-making.

National Indian Council on Aging

NICOA’s mission is to advocate for improved comprehensive health, social services, and economic wellbeing for American Indian and Alaska Native Elders. 

National Volunteer Caregiving Network
512-582-2197

NVCN’s enduring mission is to create independent living through the advocacy, support, and development of local volunteer caregiving programs.

Rosalynn Carter Institute for Caregivers

RCI provides caregivers with free coaching and other support that is anchored in research and monitored for effectiveness. Our programs are designed to promote the health, strength, and resilience of the caregivers we serve.

SAGE
SAGE is the country’s largest and oldest organization dedicated to improving the lives of lesbian, gay, bisexual, and transgender (LGBT) older adults.

State Bar Associations

Locate pro bono legal services by state.

The Arc

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities by actively supporting their full inclusion and participation in the community throughout their lifetimes. Go to their website to read about their resources, innovative programming, local chapters, and advocacy efforts. 

USAging

USAging (formerly N4A) is the national association representing and supporting the network of Area Agencies on Aging and advocating for the Title VI Native American Aging Programs. Our members help older adults and people with disabilities throughout the United States live with optimal health, well-being, independence and dignity in their homes and communities.

U.S. Department of Veteran’s Affairs—Caregiver Support Program
Caregiver Support Line: 855-260-3274

The Caregiver Support Program offers training, educational resources, and multiple tools to help veterans and caregivers. Every VA Medical Center has a Caregiver Support Coordinator (CSC).