Caregiver Groups Directory

AARP
1-888-687-2277 toll-free
1-888-342-2277 Spanish toll-free line
The AARP’s website covers the organization’s advocacy positions on a variety of elder topics including Social Security and Medicare. Helpful features include information on comparing Medigap insurance policies and information on Medicare.

Administration for Community Living / Administration on Aging

The Administration for Community Living was created around the fundamental principle that older adults and people of all ages with disabilities should be able to live where they choose, with the people they choose, and with the ability to participate fully in their communities.  ACL helps make this principle a reality for millions of Americans by funding services and supports.

Aging Life Care Association (ALCA)
520-881-8008

ALCA is an organization dedicated to the development, advancement, and promotion of humane and dignified social, psychological, and health care for the elderly and their families through counseling, treatment, and the delivery of concrete services by qualified, certified providers. The site features a Find an Aging Life Care Expert search to locate a professional.

American Association of Caregiving Youth (AACY)
561-391-7401

The American Association of Caregiving Youth (AACY) is the national resource for children who sacrifice their education, health, well-being and childhood to provide care for family members who are ill, injured, elderly or disabled.

Alzheimer’s Association
800.272.3900

The association’s nationwide network of chapters offer frontline support to individuals affected by Alzheimer’s through 24/7 information and referral services, and education and support groups. Check out their Dementia and Driving Resource Center for signs of unsafe driving, tips on having the conversation, and video vignettes illustrating supportive conversations taking place in four different situations.

American Association for Homecare (AAHomecare) 
202-372-0107

The American Association for Homecare (AAHomecare) works to preserve and strengthen access to care for the millions of Americans who require medical care in their homes. AAHomecare represents health care providers, equipment manufacturers, and other organizations in the home care community.

American Association of Service Coordinators
614-848-5958

The goal of AASC is to advance the interests of the service coordinator profession and to provide guidance and professional standards to its members. The role of the service coordinator is to link elderly, people with disabilities and low-income families to supportive services and other community resources.

American Bar Association (ABA)

This website contains text of many ABA publications and information on the activities of the ABA’s Commission on Legal Problems of the Elderly. Browse the Senior Lawyers Division, ABA Section of Real Property, Trust, and Estate Law, ABA Commission on Law and Aging pages for more resources.

American Hospice Foundation

This organization provides information and supports programs for terminally ill and grieving individuals, their families, and the professionals who care for them.

Annuity.org

A premier informational resource about annuities and structured settlements.

Caregiver Action Network
202-454-3970

The nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

CaringBridge
651-452-7940

One in thirteen people in the U.S. have used CaringBridge to rally support for a loved one during a health journey, and its reach extends to 235 countries and territories around the world.

Centers for Medicare and Medicaid Services

This is the place for information on Medicare and Medicaid.

Center for Medicare Advocacy
202-293-5760

A private, not-for-profit organization that produces a wide array of written materials to assist Medicare beneficiaries and their advocates including self-help packets, brochures, and a quarterly newsletter. Additionally, CMA is involved in education, policy making, and litigation impacting Medicare beneficiaries throughout the country.

Consumer Financial Protection Bureau

Ensures that consumers get the information they need to make sound financial decisionsPrint copies may be ordered from CFPB. Consumer Complaint line for financial products (mortgages, loans, bank services, credit reporting, etc.) 1-855-411-2372.

(The National) Consumer Voice for Quality Long-Term Care 
202-332-2275

Consumer Voice offers consumers, families, and advocates resources and information on long-term care. Their website includes resources, tips, and tools to help family members find quality long-term care for their loved one.

Disability Employment TA Center
The Center will provide evidence-based training and technical assistance (TA) to the Administration on Disabilities (AoD) grantees aimed at improving competitive, integrated employment (CIE) and economic outcomes for individuals with disabilities across the nation. 

(The) Eldercare Locator
1-800-677-1116

Sponsored by the U.S. Administration on Aging, the Eldercare Locator is a national clearinghouse for Long-term Care and helps individuals find local caregiving services / resources.

Elizabeth Dole Foundation

The foundation seeks to strengthen and empower American military caregivers and their families. The Elizabeth Dole Foundation manages the Hidden Heroes Caregiver Community where caregivers of all wars can find peer support and advice.

Family Caregiver Alliance National Center on Caregiving
(415) 434-3388 | (800) 445-8106

FCA provides services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia. Our services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers.

Federal Bureau of Investigation

The FBI provides information on common fraud schemes that targets senior citizens. It describes the scams and ways you can protect yourself.

Federal Crimes Enforcement Network

Financial Fraud Enforcement Task Force investigates suspected financial fraud.

Federal Trade Commission

FTC protects consumers from unfair, deceptive and fraudulent business practices and offers practical information on a variety of topics. Visit their website or call their helpline 1-877-FTC-HELP (382-4357).

Financial Industry Regulatory Authority (FINRA)

FINRA is dedicated to investor protection and market integrity through effective and efficient regulation of broker-dealers. FINRA is not part of the government. It is a not-for-profit organization authorized by Congress to protect America’s investors by making sure the broker-dealer industry operates fairly and honestly.

H.E.L.P.

This website includes extensive information about nursing home costs, medical decision-making and other topics.

Hospice Patients Alliance (HPA)

A private non-profit charitable corporation dedicated to serving the general public, hospice patients, their families/caregivers, the bereaved and hospice staff. HPA promotes quality hospice services whether a patient is enrolled in a licensed hospice, residing at home, or in a facility.

Investment Company Institute

ICI, among its core missions, promotes public understanding of mutual funds and other investment companies.  It partners with government agencies and other nonprofit organizations to develop, deliver, and promote investment education programs to a variety of specific audiences.

Latinos for a Secure Retirement

LSR’s mission includes protecting Social Security, strengthening Medicare, as well as increasing pension access and financial literacy. It has fact sheets and information focused on the retirement issues facing Latinos.

Leading Age
202-783-2242

The mission of LeadingAge is to be the trusted voice for aging. It has an aging services directory.  Its 6,000+ members and partners include not-for-profit organizations representing the entire field of aging services, 38 state partners, businesses, consumer groups, foundations and research partners. LeadingAge is a 501(c)(3) tax exempt charitable organization focused on education, advocacy, and applied research.

MANA, A National Latina Organization

Since 1974, MANA has been the leading voice for Latinas in the areas of health, financial well-being, education and technology access, environmental concerns, civil rights and diversity and inclusion.

Meals on Wheels America
1-888-998-6325

Meals on Wheels America is the oldest and largest national organization supporting the more than 5,000 community-based senior nutrition programs across the country that are dedicated to addressing senior hunger and isolation.

Medicare Rights Center 
Helpline: 1-800-333-4114

A non-profit organization that operates a national telephone helpline in order to help callers understand Medicare benefits, find the right coverage, and understand how any existing coverage works with Medicare.  Callers living on low or fixed incomes are also screened for additional programs that they may be eligible for that can help pay costs of Medicare.

Mesothelioma Center

The Mesothelioma Center is dedicated to providing those who suffer from the asbestos-related cancer malignant mesothelioma—also known as asbestos cancer—or from asbestos-related lung cancer, or who know someone who does, with the most up to date information and support.

National Academy of Elder Law Attorneys (NAELA)

To find lawyers who specialize in elder care.

NARFE (National Active and Retired Federal Employees Association)

The National Active and Retired Federal Employees Association is a nonprofit membership organization dedicated to protecting and enhancing the earned pay, retirement and health care benefits of federal employees, retirees and their survivors.

National Alliance for Caregiving
Phone: 202-918-1013

NAC conducts research, does policy analysis, develops national best-practice programs, and works to increase public awareness of family caregiving issues. They also provide technical assistance to a national network of caregiving coalitions representing nearly 30 states and localities in the United States.

National Alliance for Hispanic Health

The National Alliance for Hispanic Health (NAHH) is a science-based, nonprofit organization dedicated to improving the health of Hispanic communities. NAHH is the nation’s foremost source of information on Hispanic health and a science-based, community-driven advocate for health for all. As part of its mission, the alliance operates a free and confidential health helpline in Spanish as well as English.

National Alliance on Mental Health (NAMI)

NAMI, the National Alliance on Mental Illness, is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.

National Adult Protective Services Association (NAPSA)

The National Adult Protective Services Association (NAPSA) is a national non-profit  organization with members in all fifty states.  Adult Protective Services (APS) is a social services program provided by municipalities nationwide serving seniors and adults with disabilities who are in need of assistance. APS workers frequently serve as first responders in cases of abuse, neglect or exploitation.

National Association of Senior Move Managers
877-606-2766

An established group of professionals who specialize in facilitating a smooth transition for seniors moving from the home into a senior housing community.

National Center on Elder Abuse

NCEA is a resource for families, advocates, and medical, legal, and social service professionals.  They connect consumers to information on elder abuse prevention and awareness and provides state-based reporting information, helplines, and hotlines.

National Committee to Preserve Social Security and Medicare

The National Committee is one of the most effective and trustworthy sources for Social Security, Medicare and Medicaid advocacy. Since 1982, NCPSSM has been working for generations of older Americans who want our nation’s health and income security programs secured for the future.

National Council on Aging
571-527-3900

NCOA helps people aged 60+ meet the challenges of aging by providing innovative community programs and services, online help, and advocacy. Their website includes helpful online tools such as Benefits Checkup, Economic Security advice, and the AgeWell Planner.

National Caucus and Center on Black Aging, Inc.
202-637-8400

NCBA is one of the country’s oldest organizations dedicated to aging issues and the only national organization devoted to minority and low-income aging. NCBA has helped protect and improve the quality of life for elderly populations, making certain that legislators, policy makers, advocacy groups, service organizations, and the public include minority seniors in their programs, policy- and law-making.

National Fair Housing Alliance
202-898-1661

The National Fair Housing Alliance is the voice of fair housing.  NFHA works to eliminate housing discrimination and to ensure equal housing opportunity for all people.

National Foundation for Credit Counseling

NFCC is a nationwide organization of credit counseling agencies that provides certification for counselors, educational curriculum support, and standards of conduct for its member agencies.

National Guardianship Association

The mission of the National Guardianship Association is to provide educational training and networking opportunities for guardians; to promote the highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.

National Indian Council on Aging

NICOA’s mission is to advocate for improved comprehensive health, social services, and economic wellbeing for American Indian and Alaska Native Elders.  In addition to providing service through several grants from agencies within the U.S. Department of Health and Human Services, NICOA operates as a National Sponsor of the federal Senior Community Service Employment program (SCSEP) in 8 states.

National Institute on Aging

NIA, one of the 27 Institutes and Centers of NIH, leads the federal government in conducting and supporting research on aging and the health and well-being of older people. The Institute seeks to understand the nature of aging and the aging process, and diseases and conditions associated with growing older, in order to extend the healthy, active years of life.

National Memory Screening Program
866-232-8484

The Alzheimer’s Foundation of America initiated National Memory Screening Program as part of its mission to provide “optimal care and services to individuals confronting dementia, and to their caregivers and families”…and as part of its focus on “Caring for the Nation.”

National Multiple Sclerosis Society

A collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

National Parkinson Foundation

This website is a useful resource for patients, caregivers, and professionals.

National Partnership for Women & Families (NPWF) 

The National Partnership hosts a special section on caregiving which has information on important federal laws that can help caregivers; helpful articles on a range of caregiving issues, from how to prepare for the possibility of caregiving to what to do when the job suddenly falls on your shoulders; links to research on caregiving; and a resource section that highlights other sites.

National Urban League

The National Urban League is a historic civil rights organization dedicated to economic empowerment in order to elevate the standard of living in historically underserved urban communities. 

National Volunteer Caregiving Network
512-582-2197

NVCN’s enduring mission is to create independent living through the advocacy, support, and development of local volunteer caregiving programs.

PHI
718-402-7766

PHI works to ensure quality care for older adults and people with disabilities by creating quality jobs for direct care workers.

Postal Inspection Service

Investigates mail fraud, identity theft, telemarketing schemes, and other crimes often targeted at elderly citizens.  Those who believe they are victims of fraud involving the U.S. mail, should submit a Mail Fraud Complaint Form with the U.S. Postal Inspection Service.

Rosalynn Carter Institute for Caregiving
229-928-1234

The Rosalynn Carter Institute for Caregiving is an advocacy, education, research, and service unit of Georgia Southwestern State University.  It serves and supports both professional and family caregivers dealing with dementia. It also provides tips and strategies for caregivers on best practices for caring for loved ones and themselves.

SAGE
212-741-2247

SAGE is the country’s largest and oldest organization dedicated to improving the lives of lesbian, gay, bisexual, and transgender (LGBT) older adults.

Securities and Exchange Commission

The SEC’s website was designed to help individuals invest wisely and avoid fraud.  The site provides A Guide for Seniors: Protect Yourself Against Investment Fraud and other resources.

Senate Special Committee on Aging

The Special Committee on Aging provides resources on its website that can help manage financial difficulties, identify fraud, and ensure economic independence.

State Bar Associations

Locate pro bono legal services by state.

The Arc

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities by actively supporting their full inclusion and participation in the community throughout their lifetimes. Go to their website to read about their resources, innovative programming, local chapters, and advocacy efforts. 

USAging

USAging (formerly N4A) is the national association representing and supporting the network of Area Agencies on Aging and advocating for the Title VI Native American Aging Programs. Our members help older adults and people with disabilities throughout the United States live with optimal health, well-being, independence and dignity in their homes and communities.

U.S. Department of Veteran’s Affairs—Caregiver Support Program
Caregiver Support Line: 855-260-3274

The Caregiver Support Program offers training, educational resources, and multiple tools to help veterans and caregivers. Every VA Medical Center has a Caregiver Support Coordinator (CSC).

Volunteer Income Tax Assistance Program

The Volunteer Income Tax Assistance (VITA) program offers free tax help to people who generally make $54,000 or less, persons with disabilities, the elderly and limited English-speaking taxpayers who need assistance in preparing their own tax returns.

Village to Village Network
617-299-9638

Villages are local nonprofit, grassroots, membership organizations that provide a key resource to community members wishing to age in place.  Villages operate a support network for their members that provide necessary services, community engagement activities and other resources crucial to aging independently.

Well Spouse Association
1-800-838-0879

The Well Spouse Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.